Tag Archives: prostate

World Cancer Day #16

Today I found a card in my mailbox. It was from my prostate. It said, “Happy World Cancer Day!”…It would have been funny if it had a balloon….although I don’t want to think about how it would be blown up. “Thank you Prostate!” The handwriting was a little crude. How did he lick the stamp and envelope? Kinda weird huh?

“You’re Welcome prostate”, I chuckled. “To be clear” I continued, “I did it more for me than you. I have had you with me as far back as I can remember…before I knew you were there and what you were for.” We embraced with a quick “kegel hug”. Tender moments….so sweet.

Today is WCD and it is a day marked for a global initiative to raise awareness of the treatment, detection and prevention of cancer. The world rarely gets along and it’s good to see that this is one topic we can all agree on.

Well here we are discussing the old prostate. I bet his ears are burning. Wait.
Never mind…I will stay on course here. For the new folks you can start here
The last post is here on November 11, 2014.

Let me back up to December…December 2nd to be exact.
December 2, 2014: I head back to Brewer’s office to have my PSA tested for my three month check-up back in Knoxville later in the month. It was a beautiful day to check my PSA’s….sunny and a little windy and kinda warm. Did I mention the wind? It was so windy I was afraid my PSA’s might be elevated, which was a source of stress considering how hard I studied.
I arrived early and sat down for about forty-five seconds and I was quickly called to the back. The good news is today there will be no Tom Foolery. No crappy gown, no silly latex gloves and greasy jelly….just a man and his doctor catching up and drawing some blood where my PSA’s hide.
We talked about prostates, kids, golf, friends hugged it out (not really) and he sent me to the nurse who would round-up the the little boogers and count them for me or send them to the counter of the counter. My last count was a 7.7 in Knoxville. It had dropped from 9.2 right before treatment.
Believe it or not riding a bike can raise your PSA….I don’t ride bikes.

December 9, 2014: I receive a text from Doc Brewer…short and sweet, “Psa down to 2.77”. My body had been through quite a bit….for a body. Nothing awful or painful…just more than it would have otherwise…more than a sunburn and less than being beamed from an orbiting spaceship to an orange planet with blue skies and greenish surface dwellers….it took me awhile to shake the fatigue and the discomfort while I healed from the radiation. By December I was F-I-N-E fine. As quick as “it” was here, “it” was gone. I was no worse for the wear and actually felt better than I had in a year. I wasn’t really worried about the results.
But let me tell you….I was pretty freaking stoked. I was very deliberate about not riding bikes of any kind. I knew it was down. But I didn’t know for sure it was down. “2.77….suck it prostate cancer”.

December 12, 2014: I am in Knoxville for my three month check-up. It is a beautiful day in Knoxville. The test results were sent to Provision before I got there. They know what I know….I’m going to roll in there and shake some hands and give out some hugs….the confetti won’t be a big deal…not for my 2.77. I whip my whip in the parking spot facing the sun because that will keep my car a little bit warmer.

The door slides open and there are those two wonderful smiles of Kristin and Jenny. It was the first time I had been to Provision in twenty visits where I didn’t have to chug a bottle of water…..I sat there for a minute maybe. Obviously the confetti machine was broken and everyone was too embarrassed to even talk about it….I went along with it. I didn’t want them to feel any worse.

I did run into a couple from Birmingham who I had spoken to on the phone four or five times to answer questions about my experience…apparently words like, “voo-doo medicine” or “witchcraft” or “clown show” or “snake oil” or even “clown show”…..none of those words phased them, ’cause there they were. We know that’s not true…He was here for the same reason I was and I was excited they were able to make it happen.

Soooooo, me and my 2.77 strolled back in the back….I’m gonna hand out some “Howdy-do’s” and some “Whaddup’s” fill out a questionnaire, answer some questions about how I feel with the good Doctor and I’ll be back on the road in an hour….tops.

Well, I was back on the road in an hour alright. The very wonderful and funny Nurse Brittany will be my nurse which is cool. We catch up a little bit and have some laughs and I answer her questions and fill out the questionnaire. Did you ever notice the answers offered on a questionnaire are always…..always….not right for you? Am I the only one who wants to circle to answers and write the correct answer between them? Back to the event.
She gets to work
Pulse-good
blood pressure-good
temperature-check
Marcio strolls in with his awesomeness and asks a few more questions…He has clearly forgotten that I’m a clown and that I speak sarcasm…he has really let that sense of humor “go” since we used to hang out. He’s all serious again. I let it go. We celebrate my 2.77. I think his eye brows pointed up and the corners of his mouth headed north as to smile…..it was so brief I can’t be sure….he is a very sweet man and great at what he does….”stay golden Pony Boy”.

As I’m about to conclude our visit, Brittany heads for the door and Dr. Fagundes reaches for the dreaded box of blue “butt checking” gloves. I pause and I almost start asking, “Why?….but I…2…..”….I submit. My shoulders drop, I grin and say, “…what’s one more gonna hurt, right?” After three of these it’s like putting on a tie….I don’t even have to think about it.

The extra funny part was how thorough he was….”Moon River”. I don’t know, maybe it had been so long since I had a doctor’s knuckles on my tush that I forgot. I don’t care…it’s kinda funny. Hadley calls it the “prostate handshake”.

Anyway…..I got two thumbs up (And two fingers in)….but I am, at this stage on the road to being cancer free if I’m not cancer free now. It takes time to “know”. I will have my PSA drawn again before March 26th when I am scheduled for my second check up.

Life became “normal” again very quickly once the side effects subsided. Work, carpool, football, dance, football….life.

2014 was an incredible year. I wouldn’t change a thing. Yes! Cancer sucks! It has destroyed so much for so many and continues to torture many others.
Once you get that little chink in your armor…when you realize you are not invincible and “stuff” is stupid but some “stuff” isn’t….I drive a little slower and drag a few moments out just to taste them a little longer.

Am I still a jack-ass? Yes. I’m not riding around on my orange unicorn blowing kisses and farting bubbles….I still get mad, I can be moody…I will be a work in progress right up until the end.

Man, I am good. I’m gonna be just fine. I am in better health than I have been in ten years. No joke.

The prayers appear to have worked. God is good.

Tomorrow, World Cancer Day will be over but every day is cancer day. It doesn’t take a day off. Ignoring it doesn’t weaken it….action does.

If you’re worrying about the unknown, handle it. Tomorrow!

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Onward #15

It has been over two months since I have posted anything here. I read my last post to remind myself where I left this thing. If this is all new to you and you want to get caught up, my first post is here.

Tuesday, September 9th 2014: My final treatment at Provision closes out a really great experience. I am graduate 113. My final day calls for the ceremonious “ringing of the bell” to celebrate my final treatment. During my twenty days of treatment I found myself impressed by the people who provided me with the most amazing care. I began to look forward to seeing my friends. Their kindness and bright smiles did not elude me. They had such an impact on me that I will never forget. I wanted the staff….all of them…those I met as well as those I never got to meet to understand how important they were to me and my experience.

Who doesn’t like a t-shirt?: I called Frank Nystrom at Threds and told him I needed sixty-five t-shirts in less than a week. I had to look at Provision’s most current group picture of the staff on the website and guesstimate sizes. I don’t know how close I got. Michael Bozeman and Bill Hansen helped me with the artwork and logos and colors. Three emails and seventy-two business hours later the shirts are ready. Frank got it done and delivered them to my car bumper on Monday night. They were perfect.

Why come?
Each patient that completes treatment is joined in the common area at the entrance by all staff members who are available. While this day is to celebrate my graduation…I wanted to turn it around and celebrate “them”. In the days leading to my graduation I imagined the message I wanted to share with the group of administrators and care givers. They got about half…I had a lot to say. I whittled it down to whatever they got.

On this day I am joined by Michelle, Parker and Mike Frazier, who has come by to support both Michelle and I. I mentioned in an earlier post about the patient who ran over to the bell and “dinged” it with his knuckle then ran out the front door to avoid the public speaking. Additionally, I mentioned the gentleman who delivered a speech for the ages….unscripted. So eloquent and sincere. My goal was to fall somewhere in the middle. Michelle recorded it. I am not sure what I said…but I believe I conveyed that my experience was not possible without each and every person and the culture that is fostered at the facility…oh and the incredible technology that Terry Douglass brought to East Tennessee as a resource for the community. As Terry Douglass says in this video….”This is not about me”. As much as it was…I wanted it to be about them. I wanted to flip it a little bit. While I am hesitant to share this portion of the story because of the “look what I did” factor, I don’t know of another way to spotlight the caregivers and entire staff of Provision and how special they are than to tell the story.

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“Graduation Day

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“Keep Calm & Proton”

For me it was a very emotional time of my life. There were times when I’m laying there, a little more than vulnerable. I get flooded with emotion of the journey to that point, “How in the world did I get here?”. My eyes would fill with water just up to the tip of my eyelids….sometimes a smidge would drip down the side to my ear….some times. I still don’t know if it was sadness or sorrow or being one step closer to the end…the solution. I don’t know. (Note: I spoke with Joe Crockett after I posted this…we talked about being humbled by all of this…this thing…the people, the love, the impact….the ripples around us both coming and going…thanks for Joe Crockett). Now don’t think we also didn’t have fun. I would submit that we had fun every single day but maybe one…the treatment I flew back in after Alec’s wedding in Chicago. I was exhausted…and ready for a nap. From the airport to Zappacino machine. Whew!

I gave Chris my picture-taking device to capture the fun:

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“That Wonderful Balloon”

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“Put Your Left Hip In”

Friends still ask me how I’m doing. How I’m feeling…I say, “It’s really not a sad story…”. We all know what sad stories are..this isn’t one of them. Yes it was difficult at times…mostly on those around me. If I add up the pain of those around me and subtract my pain….the difference is negligible. I’m in it..I know I’m fine. I’m gonna be just fine. They worry and worry and think of the “what if’s” and run through the scenarios and end up right back where they were just to do it all over again….later when it’s quiet….rinse and repeat.

The reality: I played golf, I spent time with my family, parents, nephews, siblings, in laws, outlaws and my lifelong buddies…..most individuals can be characterized in more than one category. The most torture I endured was my golf game….it’s not any better either.
I ate some Petro’s, I ate at Pero’s, I ran into Davis O. at Stir Fry. I enjoyed a few Nixon’s deli sandwiches (due to convenience) and found myself at Sam & Andy’s knocking back a steamed deli and some rings….had lunch with my Young Life Leader, David Freels at Long’s and saw Scott Davis at Rooster’s. I got to meet Frank’s beautiful kids and do a lot the stuff a Knoxville guy does…I didn’t get to do everything I hoped to do but certainly not a bad deal.

Devin is enjoying her freshman year at Auburn. She loves Auburn. Dylan is rocking her sophomore year and lighting up the room with her smile. Parker loves 2nd grade and I must say….so did I.

A few days after I got home and Michelle and I are going to sleep….she reaches over and knocks the crap out of me….kidding. She grabbed my hand and said, “I’m so glad you’re home”….me too Miss Michelle….me too.

“Reunited”

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Biopsy Day…Lot’s to say here. #6

The Beach at Seaside

Seaside Florida

I have a date set and two weeks to go before the procedure. I have plenty of distractions. The “Circle of Trust” has widened to include some folks that I work very closely with as well as a couple of friends and a group of men in my Entrepreneur’s Organization forum. The number stands at less than twenty folks. The weeks leading up to Spring Break include an EO membership event, Parker’s baseball games and practices, Dylan’s fifteenth birthday, my EO forum’s monthly meeting as well as a planning meeting with my business partner, Jason and strategy meetings for a couple of initiatives we are working on for the company. I could not have asked for a better eleven days before Spring Break. 

As a very young man I remember a prayer. It went something like this, “Dear God, Just once…just one time…If you could ever find it in your will to provide me with a house full of beautiful young women with a beach setting during a vacation time like…like Spring Break, I will be forever in your debt. I promise to be a good boy…thanks…Amen…”. Well, He delivered, and at the moment I recalled the petition and recognized the plea lay answered before me…I chuckled at His sense of humor. I had learned later in life, after my original request and was again reminded to be specific in prayer. God had answered and it was the perfect answer…I am glad however, that I didn’t make two such requests. 

March 22-29, 2014 Spring Break: My side kick and wingman for the trip is David Hamric. I have known, “Hambone” or “Hammy” for several years but only in the last couple of years have we spent time outside of our daughters’ activities and our wives’ instruction. We both see things in our own twisted way. Dang! Hammy may have to back out. He has a bulging disc in his neck that is creating all kinds of problems. He is experiencing neck pain, his forearm is burning because of the pinched nerve.He decides he’s going…he can hurt at home or hurt at the beach…he chose the beach. He can’t sleep and the pain killers just take the edge off. I think he said the pain meds took it from a 12 to a 6.5 on his pain index with 10 being the highest number. He hung in there though. It was kind of cold and windy and a little rainy all week. We watched NCAA tourney. Eash day we would look for the perfect plan to find a little comfort for Hambone. He knew about my impending “date with Dr. Jellyfingers” and we talked about how much better it could have been if we were 100%. Not to worry, we did find some time to laugh and have a good time. We may have been the only guys who could have enjoyed the company of the other. Each of us glad we weren’t going through the other’s ordeal. All in all we did the best with what we had…and we did great.

The first week of April is a busy week. First, come up with clever April Fool’s gag. Second, Have my prostate biopsied. Next, Mike Frazier will drive the two of us down to Pensacola for a private gig at a “Change of Command” celebration. Finally, have Mike drive us back to Birmingham for another gig at Blackwell’s Neighborhood Pub. My Doctor has “signed off” for this little adventure, post biopsy. I did everything but number one…which, ironically I now do many times through out the day (think about it…there ya go).

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Let’s back it up a bit.

Tuesday, April 1, 2014: Jose’ Ordonez is stopping in Birmingham for a couple of days on his way back home to Kansas City. We have a couple of days of interviews and recruiting stuff to discuss for work. I picked him up at about 8.30pm at BHM and took him to Blackwell’s for some food and a beverage. We got back home around 11:30 or so. Michelle was up and happy to see our friend. We all lived in Knoxville in another life and share some fond memories before we started this little “growing up” thing. We enjoyed catching up and talking about kids and family and being so far away from “home”. Before you know it is 2AM. We all panic and go to sleep….well kinda. Despite the high gravity beers and the late hour I still couldn’t sleep. Carpool and work await early Wednesday morning. 

Wednesday, April 2, 2014: Rock and Roll! Jose’ and I are up, he finishes a conference call and we head to work. We have a great day! Lot’s of collaboration no down time, we are 100 mph all day. We head back to Blackwell’s after work and have a drink and then to Fleming’s for dinner and back home. I order some to-go food for Michelle. Once back home, Jose’ and I sit on the patio with a night cap talking shop. The perfect recipe for sleep. The formula: sleep deprived + long work day + wine + dinner + scotch = sleep. This is easy. I yawn myself to my palette and prepare to settle in for a delicious night’s rest. BAM! Wide awake. I knew this was happening. I was hoping to ignore it and get caught up on some much needed rest.

This is the night when I come to grips with what is really going on. I am stressed out. I have pushed this aside. Here is what I have been praying in regards to my the old prostate thing-a-majig: a) that I don’t have cancer. b) that if I do have cancer that we’ve caught it early c) that if God has chosen me to carry this burden, that I understand His purpose and I recognize the plan when it is revealed….You would think that laying in bed every night for a couple of weeks that maybe I would possibly recognize that this ordeal is taking its toll on me. What do you do? You get up everyday and do what you do everyday. If I stay busy I can hold this off. Man, I’m tired.

Sometime before this point I receive instructions for a “Prostate Needle Biopsy”…That’s the first time I heard the word needle…Well I guess that makes sense. I guess….kinda.

Here are the highlights: 

  • Fleet enema two hours before procedure
  • take an antibiotic the morning of
  • Take a valium one hour before 
  • eat normal
  • don’t drive

Just the name of the enema is funny. “Fleet”. Have fun with that for a minute. I am texting Eric, Tuesday night before the surgery. I am at the pharmacy picking up my “Fleet” two pack. I decided to get the two pack. Better to have too much than not enough. Only the valium was there. No antibiotics had been either called in or received. It doesn’t really matter. The last thing I did when I left Eric’s office a couple of weeks ago was “pick up my shield and ready my dagger”. I send him a text…here is our exchange:

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NOTE: Pretty cool, Hammy had just sent me a text when I took the screen shot for this. You can read it at the top. He added me to his Church’s prayer list. Coincidence? Nope. “You are….in good hands.” – Thank you Hammy, You’re a good man.

I also sent him a text that said, “I am going to give myself a bourbon enema so you know how my dentist feels…” I still think that is pretty funny. He reminded me that I am indeed a little twisted. 

 

Thursday April 3, 2014:Up and At’em! Jose’ and I head to the office after a cup of coffee and my prescribed morning Cipro. I have a call with Ann to discuss a timeline I am working on. I have a little more to do than I have time. I cut my call with Ann a little bit early and hand her off to Jose’. I say my goodbyes and hit the road. He knows the situation and is aware of my dread. I don’t really know what I am dreading other than the point of entry…which is kind of lame to choose that of all the other stuff I should be dreading when you look at the alternative ways they have to access my prostate. The shortest distance between two points is a straight line. The besets straight line is one that doesn’t require a scalpel and the loss of the blood. Bring it on doc! I’m your boy. I am going to be the very best patient ever.

Enema done! The last enema I recall in the very back of my mind is at a coffee bar in South Beach two years ago…I kid. I kid…I remember my grandmother flushing out the bacteria of my young bowels….”Nana Style”. Nana isn’t like Doctor Jellyfingers and the whole DRE thing. Nana took her time and was very gentle…I think. I just remember asking for “why?” and remember her telling me “because”. I remember crying and fighting and being worn down by that lady…. I was eighteen…Okay, I was at least three or maybe four years old. Yes, I do have memories of being three years old. 

Next, Valium and some water. We have to be in Homewood at 1:30pm for my procedure. Michelle is driving and I am riding ‘gun. The drive is about twenty minutes. I step out of the car and I immediately feel the valium…I didn’t fall. My legs took a second to adjust to the chemical racing through my blood stream. I giggled a little bit and told Michelle I was a little unsteady on my feet. I quickly pulled it together and walked to the elevator. The elevator opens and an attractive lady wearing a white lab coat walks by us. I smile and say, “hello”. I look at Michelle and say, “That’s my doctor”. “Really?” she asks. “Nope, I just wanted to see your reaction”. Michelle was also feeling a little strain during all of this and doing a great job of hiding it. She knew Eric was my doctor. I was surprised she bit.

We arrive at the second floor and I walk  up to sign in. Michelle has her “PEOPLE” magazine and some other smut to read while I am in the back. All of my appointments to this point have been first thing in the morning. It’s usually pretty quiet. Today it is packed with folks waiting….waiting on either a doctor or a patient. I decide that a bunch of people is a good thing. There’s a grumpy lady who is upset that the EMT’s waiting near us can’t silence their radio. I wish it bothered me. 

“DAVID SURBER”, my name is announced. They pronounce “Surber” correctly and again, I see that as a good thing. I am calm (thank you Mr. Cipro), cool and walking tall. I will be the best patient to have ever come through this place. It is just another day. I do this every Thursday. What’s the big deal?

 

 

Time #5

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Now it’s the wait and see time. I have transitioned to the “we” from the “me” part of this journey. There are just a handful of folks who are aware to some degree of what it going on with me. Looking back on this, telling Michelle was huge. To hit her over the head with this news any later would have been incredibly unfair. My goal to protect her would have caused her so much more pain. I got lucky. God certainly presented that time and I’m fortunate I took His lead. I didn’t see that at the time. I only understood it later.

Everything is actually still alright. I’m not consumed by this except when I have to go to the bathroom. So that’s only five or six times a day…plus the three or more at night before I go to sleep. So, I’ve got that going for me. Consume is a strong word…I’m still looking forward to getting this resolved so I can get my new meds that will fix this whole prostate issue up. I know it will take a few weeks for the medicine to do its job and then I will be able to start a testosterone treatment which will give me my “zip” back and life will be so much better. The guys I know who are on a testosterone replacement therapy have said it is amazing. They rant and rave about the improvement of their quality of life. This is my hope. This vision is the carrot. I am David Surber and things work out every time, all of the time.

Sunday, March 09, 2014: Michelle turns 41 today and most importantly…Daylight Savings Time begins. A year ago Michelle and I were in New York City for her “surprise” 40th birthday celebration. We had so much fun. It snowed, we saw “Wicked”, I spent time with my oldest and best friend, Jay Wright and his wife Gia and met his son again. Tibor was born on our anniversary in 2011. This year’s birthday party?….nothing. We went to Flip Burger with just our family and that was exactly what Michelle wanted. She loves her family and is completely devoted to our kids. She is a much better person than me. She wins….not even close. I collect cell phones and stack them on the corner of the table. Parker reminds me to do this when we have dinner. He gets it. Be in the now.

Tuesday, March 11, 2014: Audrey Julian is born. Audrey Julian is born to Jeff and Brandy Julian. A day for celebration for sure, I think she was born about the time I am getting some pretty crappy news. I have an 8:30 appointment at his office. I can’t remember if this was scheduled at the first appointment or later. I head back to an examination room to meet with Eric. What’s going on in my head? I am prepared for the worst and hopeful for the best news. Eric comes in and we chat a little bit about baseball. Our boys play in the same league and he is a coach. Down to business.He explains that my PSA levels didn’t go down or stay the same. In fact they went up from 7.4 to 9.2.

I have a Phd in fun. I like fun, I like to laugh. I like folks to be happy and humor is my weapon of choice as well as my shield. This is a very serious conversation. My friend has been carrying this burden and is now telling be some “not so great” news. Armed with my humor I keep my wit in its sheath and my shield on the floor. I have also learned when to shut up and listen. I may have lobbed out some “optimism” while we talked but my role in this discussion is clear. Be respectful of what Eric is saying and soak it in. I am going to have to tell Michelle and I must have as many answers to her many, many questions as I can. Michelle is a “details” person. I am a “big picture” person. While she seeks to understand the details she has an ‘interrogation style” of questioning. Its rapid fire and its intelligent. I must be prepared. We know more than we did but we still have a lot to learn. When I leave I do know one thing. I have scheduled a prostate biopsy scheduled for April 3rd.

As I said earlier I hoped for the best but was prepared for the worst. This would be considered the worst news. I’m okay…I think. I had a Chamber Lunch where I serve as an Ambassador. It was a great distraction. Meeting new members and spending a few minutes with a really positive and inspiring group of folks. Michael Giardina is unknowingly providing me some good medicine. Being himself. We will meet again in Seaside, Florida for Spring Break 2014. I’ll save that story for another day.